The Prader Willi Syndrome Association of Alberta was established in 1986 and is dedicated to helping the Prader Willi Syndrome community. The main priorities of the association are expressed in their mission statement.

 

Mission statement

“To connect with, inform and provide support to people affected by PWS in Alberta and to advance local research.”

 

 


Mark your calendar for our upcoming Annual General Meeting / Luncheon Social for the Prader-Willi Syndrome Association of Alberta

Saturday, June 10th

11:30 AM lunch, meeting to follow

G.H. Dawe Community Centre

56 Holt St, Red Deer, AB T4N 6A6

(403) 406-8600

http://www.reddeer.ca/recreation-and-culture/recreation/recreation-facilities/gh-dawe-community-centre/

 

A selection of healthy choices to eat.  Free indoor swimming for those who wish (let them know at the front desk that you are with PWSAA).  You can bring crafts or games for your children to do in the room during the meeting as well.  At least one parent needs attend the AGM.  Free to all of our members and future members.  Bring any in your family that are able to come on that day; all is provided as we understand the inconvenience of travel time; it is healthy to socialize with others who share common joys and challenges, plus we need to give input for our association’s ambitions and future.  Please collect any ideas for easy fundraisers to support an annual camp experience we have researched.  All members have a vote at our meeting.

To keep current as to what is happening with our community, upcoming FPWR conferences and One Small Step events on our website or Facebook page:  http://www.pwsaa.ca/

IF you can or cannot attend, please send your numbers attending or regrets to Tricia Kamba by May 21, 2017 so that we can plan for food and space.

CONTACT:  RSVP to tricia.kamba@gmail.com or call and leave a message for Tricia at #780-998-7167


Prader Willi Syndrome Guide


Click the image above to go directly to the FPWR website, or click here to read more about the upcoming conference on a save the date PDF.


Has your Calgary-area company switched to RMCP Office Supply yet?
Earn points with every purchase from RMCP, and those points can be redeemed as a donation to the Prader Willi Syndrome Association of Alberta!
Operating since 1999, RMCP Office Supply is the trusted solution for office supplies in Calgary and surrounding areas, and has earned an A+ rating with the Better Business Bureau (BBB). Learn more at www.rmcp.ca.

 

 


Prader Willi Syndrome Global Registry

Recently a PWS registry has been launched. The purpose of the registry is to develop a comprehensive database of individuals with PWS to better understand the full spectrum of PWS characteristics, to expedite the completion of clinical trials, and to determine areas of needed research and treatments to improve the lives of those affected by PWS. The infomation we can provide them is important, please consider registering today!

 

Case Western Reserve University,Genetic Counseling Training Program Study

If you are 18 years old or older, have a brother or sister with Prader-Willi Syndrome that is at least 5 years old, and have lived in the same home as your sibling with PWS for at least one year, your participation in this study would be greatly appreciated.

For more information Click here

 

The Prader-Willi Syndrome Association of Alberta is grateful for the following Donations:

2014

DONATIONS IN MEMORY OF TREVOR  $725

Encana Corporation  $360

2015

Phil and Julie Jarmin $100

Marion Fortier $50

2016

IN MEMORY OF TREVOR $100

If you are experiencing financial hardship and would benefit from receiving some support to attend a PWS conference, event, webinar…, please contact our board with a proposal.  Funds are limited and decisions are made by board members on a case-by-case, needs-based protocol.

(Forward to Brooke, brookergibson@gmail.com)