The Prader Willi Syndrome Association of Alberta was established in 1986 and is dedicated to helping the Prader Willi Syndrome community. The main priorities of the association are expressed in their mission statement.
Mission statement
“To connect with, inform and provide support to people affected by PWS in Alberta and to advance local research.”
Prader Willi Syndrome Global Registry
Recently a PWS registry has been launched. The purpose of the registry is to develop a comprehensive database of individuals with PWS to better understand the full spectrum of PWS characteristics, to expedite the completion of clinical trials, and to determine areas of needed research and treatments to improve the lives of those affected by PWS. The infomation we can provide them is important, please consider registering today!
Save the Date: 9th IPWSO Conference: Building Global Community – July 20 – 24, 2016,
hosted by FPWR Canada
(Click here for more information)
Case Western Reserve University,Genetic Counseling Training Program Study If you are 18 years old or older, have a brother or sister with Prader-Willi Syndrome that is at least 5 years old, and have lived in the same home as your sibling with PWS for at least one year, your participation in this study would be greatly appreciated. For more information Click here |
The Prader-Willi Syndrome Association of Alberta is grateful for the following Donations: 2014 DONATIONS IN MEMORY OF TREVOR $725 Encana Corporation $360 2015 Phil and Julie Jarmin $100 Marion Fortier $50 2016 IN MEMORY OF TREVOR $100 |
If you are experiencing financial hardship and would benefit from receiving some support to attend a PWS conference, event, webinar…, please contact our board with a proposal. Funds are limited and decisions are made by board members on a case-by-case, needs-based protocol. (Forward to Brooke, brookergibson@gmail.com) |